Should I be exercising to build my strength back?
Not if effort makes you worse a day or two later. That pattern is post-exertional malaise, and pushing through it causes harm.
NICE no longer recommends graded exercise therapy for this, and pacing is the approach with evidence behind it. If you do not get that delayed crash, gentle graded activity is reasonable.
My infection was mild. Can I really have long COVID?
Yes, and this is one of the commonest things people are wrongly told. Most cases follow mild infection.
How ill you were at the time predicts very little about your risk.
Is this in my head?
No. Research has identified real immune, vascular and autonomic abnormalities in long COVID.
Low mood and anxiety are consequences of being ill and disbelieved, not the explanation for the illness.
Why do I feel so awful when I stand up?
That may be PoTS — a jump in heart rate on standing, common in long COVID and frequently missed.
Measure your heart rate lying and then standing over ten minutes and bring the numbers. Fluids, salt, compression and sometimes medication help considerably.
Will I get better?
Most people improve over months to a couple of years, usually gradually and with fluctuation rather than in a straight line.
A minority remain severely affected, and we would rather tell you that honestly than promise a recovery timeline nobody can guarantee.
Why does everything come back a day or two after I do something?
That delay is exactly what post-exertional malaise looks like, and the gap is why the pattern is so hard to spot.
An activity diary makes it visible, and once you can see it, pacing becomes much easier to do.
Do I need lots of tests?
You need a specific set of blood tests to exclude the treatable things that mimic it — iron deficiency, thyroid disease, coeliac disease, diabetes and B12 deficiency among them.
No test confirms long COVID, and normal results do not mean nothing is wrong.
Are the private treatments I keep reading about worth it?
Blood filtration, hyperbaric oxygen, anticoagulation and large supplement protocols do not have good evidence, and some carry real risk.
Costs run into thousands. Ask what randomised trial evidence exists before paying for anything, and we will give you a straight answer.
Should I have another vaccine dose?
Vaccination before infection reduces the risk of developing long COVID, and staying up to date reduces the chance of a reinfection setting you back.
Responses among people who already have long COVID vary, and it is worth discussing your own situation rather than following a general rule.
Can you help with work?
Yes, and this is often the most useful thing we do. Sick notes, phased return plans, and detailed letters supporting workplace adjustments.
Long COVID may count as a disability under the Equality Act, which entitles you to reasonable adjustments — worth knowing before you have that conversation with an employer.